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Bilingualism Questionnaire Process:

  1. Timing of Distribution:

    • The bilingualism questionnaire should be sent

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    • immediately after the initial phone call

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    • with the participant.

  1. Completion Deadline:

    • Ensure that the questionnaire is completed prior to the first in-person session.

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  1. Reviewing Responses:

    • After the participant submits the questionnaire, review their responses for any missing information. If necessary, ask the participant to provide the missing information during the first in-person session.

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content[{"type":"paragraph","content":[{"type":"text","text":"When reviewing the responses, make sure to review the question that asks the following: "}]},{"type":"paragraph","content":[{"type":"text","text":"“Please answer the following question by selecting languages that you do not speak but have heard or read in certain environments.","marks":[{"type":"em"}]}]},{"type":"paragraph","content":[{"type":"text","text":"What languages have you heard or read in your environment (family, work, leisure, television, reading) ","marks":[{"type":"em"}]},{"type":"text","text":"that you did not mention in the previous question","marks":[{"type":"em"},{"type":"strong"}]},{"type":"text","text":"?”","marks":[{"type":"em"}]}]},{"type":"paragraph","content":[{"type":"text","text":"If a patient selects an answer that they already selected previously, this will cause a duplication in the branching below. If that is the case, the clinician must review the questionnaire after the fact and clear/rest the answers in the duplicated language before unselecting the language selected."}]},{"type":"mediaSingle","attrs":{"layout":"center"},"content":[{"type":"media","attrs":{"type":"external","height":800,"width":1526,"url":"https://cloud.wikis.utexas.edu/wiki/download/attachments/107708681/34bknu2zjmw.

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png"}}]},{"type":"paragraph","content":[]}]
  1. Special Case for Barcelona Participants:

    • Some participants from Barcelona may have already completed the questionnaire before the start of the R01 study. If

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    • they participated prior to the R01, you will need to

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    • :

      • Access Qualtrics, extract the data, and

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      • manually input it

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      • into the "Primera Visita Cuestionario de Bilingüismo" in Redcap

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      • .

  1. Data Storage:

    • The Pre-R01 Bilingualism Questionnaire data is

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  1. Future Updates:

    • We have discussed the possibility of moving this data to the Data Raw project for future organization.


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content[{"type":"paragraph","content":[{"type":"text","text":"Proceso del Cuestionario de Bilingüismo:","marks":[{"type":"strong"}]}]},{"type":"orderedList","attrs":{"order":1},"content":[{"type":"listItem","content":[{"type":"paragraph","content":[{"type":"text","text":"Momento de Envío:","marks":[{"type":"strong"}]}]},{"type":"bulletList","content":[{"type":"listItem","content":[{"type":"paragraph","content":[{"type":"text","text":"El cuestionario de bilingüismo debe ser enviado inmediatamente después de la llamada telefónica inicial con el participante."}]}]}]}]},{"type":"listItem","content":[{"type":"paragraph","content":[{"type":"text","text":"Fecha Límite para Completarlo:","marks":[{"type":"strong"}]}]},{"type":"bulletList","content":[{"type":"listItem","content":[{"type":"paragraph","content":[{"type":"text","text":"Asegúrese de que el cuestionario esté "},{"type":"text","text":"completado antes","marks":[{"type":"strong"}]},{"type":"text","text":" de la primera sesión presencial."}]}]}]}]},{"type":"listItem","content":[{"type":"paragraph","content":[{"type":"text","text":"Revisión de Respuestas:","marks":[{"type":"strong"}]}]},{"type":"bulletList","content":[{"type":"listItem","content":[{"type":"paragraph","content":[{"type":"text","text":"Después de que el participante envíe el cuestionario, revise las respuestas en busca de cualquier información faltante. Si es necesario, solicite la información pendiente durante la primera sesión presencial."}]}]}]}]}]},{"type":"expand","attrs":{"title":"Nota importante"},"content":[{"type":"paragraph","content":[{"type":"text","text":"Al revisar las respuestas, asegúrese de que se haya respondido a la siguiente pregunta:"}]},{"type":"paragraph","content":[{"type":"text","text":"\"Por favor, responda a la siguiente pregunta seleccionando lenguas que no habla, pero que ha escuchado o leído en ciertos entornos.","marks":[{"type":"em"},{"type":"strong"}]},{"type":"hardBreak"},{"type":"text","text":"¿Qué lenguas has escuchado o leído en tu entorno (familia, trabajo, ocio, televisión, lectura) que no hayas mencionado en la pregunta anterior?\"","marks":[{"type":"em"},{"type":"strong"}]}]},{"type":"paragraph","content":[{"type":"text","text":"Si un participante selecciona un idioma que ya había seleccionado anteriormente, esto causará una duplicación en la lógica de ramificación abajo. En ese caso, el clínico deberá revisar el cuestionario después, borrar o restablecer las respuestas duplicadas y luego desmarcar el idioma seleccionado por error."}]},{"type":"mediaSingle","attrs":{"layout":"center"},"content":[{"type":"media","attrs":{"type":"external","height":800,"width":1526,"url":"https://cloud.wikis.utexas.edu/wiki/download/attachments/107708681/kamshavdz9.png"}}]}]},{"type":"orderedList","attrs":{"order":4},"content":[{"type":"listItem","content":[{"type":"paragraph","content":[{"type":"text","text":"Caso Especial para Participantes de Barcelona:","marks":[{"type":"strong"}]}]},{"type":"bulletList","content":[{"type":"listItem","content":[{"type":"paragraph","content":[{"type":"text","text":"Algunos participantes de Barcelona pueden haber recibido el cuestionario antes del inicio del estudio R01. Si participaron antes del inicio del R01, deberá:"}]},{"type":"bulletList","content":[{"type":"listItem","content":[{"type":"paragraph","content":[{"type":"text","text":"Acceder a "},{"type":"text","text":"Qualtrics","marks":[{"type":"strong"}]},{"type":"text","text":", extraer los datos y luego ingresarlos manualmente en el \"Primera Visita Cuestionario de Bilingüismo\" en Redcap."}]}]}]}]}]}]},{"type":"listItem","content":[{"type":"paragraph","content":[{"type":"text","text":"Almacenamiento de Datos:","marks":[{"type":"strong"}]}]},{"type":"bulletList","content":[{"type":"listItem","content":[{"type":"paragraph","content":[{"type":"text","text":"Los datos del Cuestionario de Bilingüismo Pre-R01 se encuentran actualmente en dos ubicaciones:"}]},{"type":"bulletList","content":[{"type":"listItem","content":[{"type":"paragraph","content":[{"type":"text","text":"Enlace a Box: Datos del Cuestionario de Bilingüismo (Pacientes Pre-R01)","marks":[{"type":"link","attrs":{"href":"https://utexas.box.com/s/jw5ijben2jt7cagkn1kv0xmfhtmikusw"}}]},{"type":"text","text":" (Incluye todos los pacientes Pre-R01, tx y datos de speechFTLD-B); Redcap Project "},{"type":"text","text":"Bilingual_questionnaire_4 (Redcap SEN)

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And here: Evaluación de lenguaje Pre-R01 (speechFTLD B) redcap project

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We have discussed the possibility of moving it to Data Raw

1. En Record Status Dashboard o Add/Edit Records, selecciona el botón para abrir el

Cuestionario De Bilingüismo Primera Visita

2. Selecciona el idioma dominante del participante

 

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4. Selecciona si el participante es paciente o voluntario.

image-20240625-132053.pngImage Removed

5. Selecciona “Save and Stay”

6. Envia el cuestionario al paciente

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","marks":[{"type":"link","attrs":{"href":"https://redcap.sen.es/redcap_v13.1.27/DataEntry/record_status_dashboard.php?pid=250"}}]}]}]},{"type":"listItem","content":[{"type":"paragraph","content":[{"type":"text","text":"En Redcap, bajo el proyecto "},{"type":"text","text":"Evaluación de Lenguaje Pre-R01","marks":[{"type":"link","attrs":{"href":"https://redcap.iibsantpau.cat/redcap_v14.0.2/DataEntry/record_status_dashboard.php?pid=623"}},{"type":"strong"}]},{"type":"text","text":" ","marks":[{"type":"link","attrs":{"href":"https://redcap.iibsantpau.cat/redcap_v14.0.2/DataEntry/record_status_dashboard.php?pid=623"}}]},{"type":"text","text":"(para pacientes de speechFTLD-B)."}]}]}]}]}]}]},{"type":"listItem","content":[{"type":"paragraph","content":[{"type":"text","text":"Actualizaciones Futuras:","marks":[{"type":"strong"}]}]},{"type":"bulletList","content":[{"type":"listItem","content":[{"type":"paragraph","content":[{"type":"text","text":"Se ha discutido la posibilidad de mover estos datos al proyecto "},{"type":"text","text":"Data Raw","marks":[{"type":"strong"}]},{"type":"text","text":" para una futura organización."}]}]}]}]}]},{"type":"paragraph","content":[]}]

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content[{"type":"paragraph","content":[{"type":"text","text":"In "},{"type":"text","text":"Record Status Dashboard ","marks":[{"type":"strong"}]},{"type":"text","text":"or "},{"type":"text","text":"Add/Edit Records","marks":[{"type":"strong"}]},{"type":"text","text":", select the button to open the "},{"type":"text","text":"Bilingualism Questionnaire Primera Visita","marks":[{"type":"strong"}]},{"type":"text","text":"."}]},{"type":"rule"},{"type":"paragraph","content":[{"type":"text","text":"En "},{"type":"text","text":"Record Status Dashboard","marks":[{"type":"strong"}]},{"type":"text","text":" o "},{"type":"text","text":"Add/Edit Records","marks":[{"type":"strong"}]},{"type":"text","text":", selecciona el botón para abrir el "},{"type":"text","text":"Cuestionario de Bilingüismo Primera Visita","marks":[{"type":"strong"}]},{"type":"text","text":"."}]}]
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content[{"type":"paragraph","content":[{"type":"text","text":"Select the participant's dominant language.","marks":[{"type":"strong"}]}]},{"type":"rule"},{"type":"paragraph","content":[{"type":"text","text":"Selecciona el idioma dominante del participante ","marks":[{"type":"strong"}]}]},{"type":"paragraph","content":[{"type":"text","text":" "}]},{"type":"mediaSingle","attrs":{"layout":"center"},"content":[{"type":"media","attrs":{"type":"external","height":278,"width":794,"url":"https://cloud.wikis.utexas.edu/wiki/download/attachments/107708681/image-20240625-132034.png?version=1&modificationDate=1719393450996&cacheVersion=1&api=v2&borderSize=&borderColor=&targetURL="}}]},{"type":"paragraph","content":[]}]
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content[{"type":"paragraph","content":[{"type":"text","text":"Select whether the participant is a "},{"type":"text","text":"patient or a volunteer.","marks":[{"type":"strong"}]}]},{"type":"rule"},{"type":"paragraph","content":[{"type":"text","text":"Selecciona si el participante es "},{"type":"text","text":"paciente o voluntario.","marks":[{"type":"strong"}]}]},{"type":"paragraph","content":[]},{"type":"mediaSingle","attrs":{"layout":"center"},"content":[{"type":"media","attrs":{"type":"external","height":344,"width":1022,"url":"https://cloud.wikis.utexas.edu/wiki/download/attachments/107708681/image-20240625-132053.png?version=1&modificationDate=1719393451004&cacheVersion=1&api=v2&borderSize=&borderColor=&targetURL="}}]},{"type":"heading","attrs":{"level":2},"content":[]},{"type":"paragraph","content":[]}]
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content[{"type":"paragraph","content":[{"type":"text","text":"Send the questionnaire to the patient.","marks":[{"type":"strong"}]}]},{"type":"paragraph","content":[{"type":"text","text":"A ","marks":[{"type":"strong"}]},{"type":"text","text":"video explaining","marks":[{"type":"link","attrs":{"href":"https://utexas.box.com/s/aqxlk7va86hw6gj8tp4qiqv0qim0cv02"}},{"type":"strong"}]},{"type":"text","text":" how to do it.","marks":[{"type":"strong"}]}]},{"type":"rule"},{"type":"paragraph","content":[{"type":"text","text":"Envía el cuestionario al paciente ","marks":[{"type":"strong"}]}]},{"type":"paragraph","content":[{"type":"text","text":"Un video explicando como hacerlo.","marks":[{"type":"link","attrs":{"href":"https://utexas.box.com/s/aqxlk7va86hw6gj8tp4qiqv0qim0cv02"}},{"type":"strong"}]},{"type":"text","text":" ","marks":[{"type":"strong"}]}]}]

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Lab Decisions/ Decisiones del lab

No lab decisions have been made regarding the use of this questionnaire. It should be administered as stated in the steps.


No se han tomado decisiones en el laboratorio con respecto al uso de este cuestionario. Debe administrarse tal como se indica en los pasos.