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The bilingualism questionnaire should be sent right after the initial phone call that takes place.

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content[{"type":"heading","attrs":{"level":2},"content":[{"type":"text","text":"What is the Bilingualism Questionnaire? ","marks":[{"type":"strong"}]}]},{"type":"paragraph","content":[{"type":"text","text":"The "},{"type":"text","text":"Bilingualism Questionnaire","marks":[{"type":"strong"}]},{"type":"text","text":" is a tool used to assess an individual’s language proficiency, use, and history, particularly in bilingual or multilingual populations. It is designed to gather detailed information about how people use their languages in different contexts (e.g., at home, work, in social settings), as well as their level of proficiency in each language. "}]},{"type":"heading","attrs":{"level":3},"content":[{"type":"text","text":"Key Features of the Bilingualism Questionnaire:"}]},{"type":"orderedList","attrs":{"order":1},"content":[{"type":"listItem","content":[{"type":"paragraph","content":[{"type":"text","text":"Language Proficiency Assessment","marks":[{"type":"strong"}]},{"type":"text","text":":"}]},{"type":"bulletList","content":[{"type":"listItem","content":[{"type":"paragraph","content":[{"type":"text","text":"The questionnaire typically asks individuals to self-report their proficiency in each of the languages they speak, across various domains like "},{"type":"text","text":"speaking","marks":[{"type":"strong"}]},{"type":"text","text":", "},{"type":"text","text":"listening","marks":[{"type":"strong"}]},{"type":"text","text":", "},{"type":"text","text":"reading","marks":[{"type":"strong"}]},{"type":"text","text":", and "},{"type":"text","text":"writing","marks":[{"type":"strong"}]},{"type":"text","text":"."}]}]}]}]},{"type":"listItem","content":[{"type":"paragraph","content":[{"type":"text","text":"Language Use in Various Contexts","marks":[{"type":"strong"}]},{"type":"text","text":":"}]},{"type":"bulletList","content":[{"type":"listItem","content":[{"type":"paragraph","content":[{"type":"text","text":"Gathers data on how often and in which contexts individuals use each language. The goal is to identify the frequency and domains in which each language is active in the person's life."}]}]}]}]},{"type":"listItem","content":[{"type":"paragraph","content":[{"type":"text","text":"Age of Language Acquisition","marks":[{"type":"strong"}]},{"type":"text","text":":"}]},{"type":"bulletList","content":[{"type":"listItem","content":[{"type":"paragraph","content":[{"type":"text","text":"The questionnaire often includes questions about when the person first learned each language, including whether the languages were learned "},{"type":"text","text":"simultaneously","marks":[{"type":"strong"}]},{"type":"text","text":" (early childhood bilingualism) or "},{"type":"text","text":"sequentially","marks":[{"type":"strong"}]},{"type":"text","text":" (learning a second language later in life)."}]}]},{"type":"listItem","content":[{"type":"paragraph","content":[{"type":"text","text":"This is important for understanding language development and the relative dominance of different languages over time."}]}]}]}]},{"type":"listItem","content":[{"type":"paragraph","content":[{"type":"text","text":"Language Dominance","marks":[{"type":"strong"}]},{"type":"text","text":":"}]},{"type":"bulletList","content":[{"type":"listItem","content":[{"type":"paragraph","content":[{"type":"text","text":"A section may assess "},{"type":"text","text":"language dominance","marks":[{"type":"strong"}]},{"type":"text","text":" to determine which language the individual is most comfortable with or uses most often."}]}]}]}]},{"type":"listItem","content":[{"type":"paragraph","content":[{"type":"text","text":"Cultural Exposure and Identity","marks":[{"type":"strong"}]},{"type":"text","text":":"}]},{"type":"bulletList","content":[{"type":"listItem","content":[{"type":"paragraph","content":[{"type":"text","text":"The questionnaire may explore "},{"type":"text","text":"cultural identity","marks":[{"type":"strong"}]},{"type":"text","text":" and exposure to each language. "}]}]}]}]},{"type":"listItem","content":[{"type":"paragraph","content":[{"type":"text","text":"Social and Environmental Factors","marks":[{"type":"strong"}]},{"type":"text","text":":"}]},{"type":"bulletList","content":[{"type":"listItem","content":[{"type":"paragraph","content":[{"type":"text","text":"Additional questions might focus on the individual’s "},{"type":"text","text":"environmental factors","marks":[{"type":"strong"}]},{"type":"text","text":", such as:"}]},{"type":"bulletList","content":[{"type":"listItem","content":[{"type":"paragraph","content":[{"type":"text","text":"The language spoken in their family, community, or country of origin."}]}]},{"type":"listItem","content":[{"type":"paragraph","content":[{"type":"text","text":"Whether they live in a bilingual or monolingual environment, and how that influences their language skills."}]}]},{"type":"listItem","content":[{"type":"paragraph","content":[{"type":"text","text":"The role of education (formal or informal) in acquiring or maintaining each language."}]}]}]}]}]}]}]},{"type":"paragraph","content":[]}]
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content[{"type":"heading","attrs":{"level":3},"content":[{"type":"text","text":"¿Qué es el Cuestionario de Bilingüismo?"}]},{"type":"paragraph","content":[{"type":"text","text":"El "},{"type":"text","text":"Cuestionario de Bilingüismo","marks":[{"type":"strong"}]},{"type":"text","text":" es una herramienta utilizada para evaluar la competencia lingüística, el uso y la historia de un individuo, especialmente en poblaciones bilingües o multilingües. Está diseñado para recopilar información detallada sobre cómo las personas usan sus lenguas en diferentes contextos (por ejemplo, en casa, el trabajo, en entornos sociales), así como su nivel de competencia en cada idioma."}]},{"type":"heading","attrs":{"level":3},"content":[{"type":"text","text":"Características clave del Cuestionario de Bilingüismo:"}]},{"type":"orderedList","attrs":{"order":1},"content":[{"type":"listItem","content":[{"type":"paragraph","content":[{"type":"text","text":"Evaluación de la Competencia Lingüística","marks":[{"type":"strong"}]},{"type":"text","text":":"}]},{"type":"bulletList","content":[{"type":"listItem","content":[{"type":"paragraph","content":[{"type":"text","text":"El cuestionario generalmente solicita a los individuos que informen sobre su competencia en cada uno de los idiomas que hablan, en varios dominios como hablar, escuchar, leer y escribir."}]}]}]}]},{"type":"listItem","content":[{"type":"paragraph","content":[{"type":"text","text":"Uso del Idioma en Diversos Contextos","marks":[{"type":"strong"}]},{"type":"text","text":":"}]},{"type":"bulletList","content":[{"type":"listItem","content":[{"type":"paragraph","content":[{"type":"text","text":"Recopila datos sobre la frecuencia y en qué contextos los individuos usan cada idioma. El objetivo es identificar la frecuencia y los ámbitos en los que cada idioma está activo en la vida de la persona."}]}]}]}]},{"type":"listItem","content":[{"type":"paragraph","content":[{"type":"text","text":"Edad de Adquisición del Idioma","marks":[{"type":"strong"}]},{"type":"text","text":":"}]},{"type":"bulletList","content":[{"type":"listItem","content":[{"type":"paragraph","content":[{"type":"text","text":"El cuestionario a menudo incluye preguntas sobre cuándo la persona aprendió por primera vez cada idioma, incluyendo si los idiomas fueron aprendidos de forma simultánea (bilingüismo en la primera infancia) o secuencial (aprendizaje de un segundo idioma en la adultez)."}]}]},{"type":"listItem","content":[{"type":"paragraph","content":[{"type":"text","text":"Esto es importante para comprender el desarrollo del idioma y la dominancia relativa de los diferentes idiomas a lo largo del tiempo."}]}]}]}]},{"type":"listItem","content":[{"type":"paragraph","content":[{"type":"text","text":"Dominancia Lingüística","marks":[{"type":"strong"}]},{"type":"text","text":":"}]},{"type":"bulletList","content":[{"type":"listItem","content":[{"type":"paragraph","content":[{"type":"text","text":"Puede incluir una sección para evaluar la "},{"type":"text","text":"dominancia lingüística","marks":[{"type":"strong"}]},{"type":"text","text":", con el fin de determinar qué idioma es el que la persona usa con mayor frecuencia o en el que se siente más cómoda."}]}]}]}]},{"type":"listItem","content":[{"type":"paragraph","content":[{"type":"text","text":"Exposición Cultural e Identidad","marks":[{"type":"strong"}]},{"type":"text","text":":"}]},{"type":"bulletList","content":[{"type":"listItem","content":[{"type":"paragraph","content":[{"type":"text","text":"El cuestionario puede explorar la "},{"type":"text","text":"identidad cultural","marks":[{"type":"strong"}]},{"type":"text","text":" y la exposición a cada idioma, evaluando la conexión emocional y social que el individuo tiene con cada lengua."}]}]}]}]},{"type":"listItem","content":[{"type":"paragraph","content":[{"type":"text","text":"Factores Sociales y Ambientales","marks":[{"type":"strong"}]},{"type":"text","text":":"}]},{"type":"bulletList","content":[{"type":"listItem","content":[{"type":"paragraph","content":[{"type":"text","text":"Preguntas adicionales pueden centrarse en factores ambientales del individuo, tales como:"}]},{"type":"bulletList","content":[{"type":"listItem","content":[{"type":"paragraph","content":[{"type":"text","text":"El idioma que se habla en su familia, comunidad o país de origen."}]}]},{"type":"listItem","content":[{"type":"paragraph","content":[{"type":"text","text":"Si vive en un entorno bilingüe o monolingüe, y cómo eso influye en sus habilidades lingüísticas."}]}]},{"type":"listItem","content":[{"type":"paragraph","content":[{"type":"text","text":"El papel de la educación (formal o informal) en la adquisición o el mantenimiento de cada idioma."}]}]}]}]}]}]}]},{"type":"paragraph","content":[]}]
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Bilingualism Questionnaire Process:

  1. Timing of Distribution:

    • The bilingualism questionnaire should be sent immediately after the initial phone call with the participant.

  2. Completion Deadline:

    • Ensure that the questionnaire is completed prior to the first in-person session.

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  1. Reviewing Responses:

    • After the participant submits the questionnaire, review their responses for any missing information. If necessary, ask the participant to provide the missing information during the first in-person session.

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content[{"type":"paragraph","content":[{"type":"text","text":"When reviewing the responses, make sure to review the question that asks the following: "}]},{"type":"paragraph","content":[{"type":"text","text":"“Please answer the following question by selecting languages that you do not speak but have heard or read in certain environments.","marks":[{"type":"em"}]}]},{"type":"paragraph","content":[{"type":"text","text":"What languages have you heard or read in your environment (family, work, leisure, television, reading) ","marks":[{"type":"em"}]},{"type":"text","text":"that you did not mention in the previous question","marks":[{"type":"em"},{"type":"strong"}]},{"type":"text","text":"?”","marks":[{"type":"em"}]}]},{"type":"paragraph","content":[{"type":"text","text":"If a patient selects an answer that they already selected previously, this will cause a duplication in the branching below. If that is the case, the clinician must review the questionnaire after the fact and clear/rest the answers in the duplicated language before unselecting the language selected.

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  1. Special Case for Barcelona Participants:

    • Some participants from Barcelona may have already completed the questionnaire before the start of the R01 study. If

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    • they participated prior to the R01, you will need to

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    • :

      • Access Qualtrics, extract the data, and

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      • manually input it

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      • into the "Primera Visita Cuestionario de Bilingüismo" in Redcap

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      • .

  1. Data Storage:

    • The Pre-R01 Bilingualism Questionnaire data is

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  1. Future Updates:

    • We have discussed the possibility of moving this data to the Data Raw project for future organization.


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content[{"type":"paragraph","content":[{"type":"text","text":"Proceso del Cuestionario de Bilingüismo:","marks":[{"type":"strong"}]}]},{"type":"orderedList","attrs":{"order":1},"content":[{"type":"listItem","content":[{"type":"paragraph","content":[{"type":"text","text":"Momento de Envío:","marks":[{"type":"strong"}]}]},{"type":"bulletList","content":[{"type":"listItem","content":[{"type":"paragraph","content":[{"type":"text","text":"El cuestionario de bilingüismo debe ser enviado inmediatamente después de la llamada telefónica inicial con el participante."}]}]}]}]},{"type":"listItem","content":[{"type":"paragraph","content":[{"type":"text","text":"Fecha Límite para Completarlo:","marks":[{"type":"strong"}]}]},{"type":"bulletList","content":[{"type":"listItem","content":[{"type":"paragraph","content":[{"type":"text","text":"Asegúrese de que el cuestionario esté "},{"type":"text","text":"completado antes","marks":[{"type":"strong"}]},{"type":"text","text":" de la primera sesión presencial."}]}]}]}]},{"type":"listItem","content":[{"type":"paragraph","content":[{"type":"text","text":"Revisión de Respuestas:","marks":[{"type":"strong"}]}]},{"type":"bulletList","content":[{"type":"listItem","content":[{"type":"paragraph","content":[{"type":"text","text":"Después de que el participante envíe el cuestionario, revise las respuestas en busca de cualquier información faltante. Si es necesario, solicite la información pendiente durante la primera sesión presencial."}]}]}]}]}]},{"type":"expand","attrs":{"title":"Nota importante"},"content":[{"type":"paragraph","content":[{"type":"text","text":"Al revisar las respuestas, asegúrese de que se haya respondido a la siguiente pregunta:"}]},{"type":"paragraph","content":[{"type":"text","text":"\"Por favor, responda a la siguiente pregunta seleccionando lenguas que no habla, pero que ha escuchado o leído en ciertos entornos.","marks":[{"type":"em"},{"type":"strong"}]},{"type":"hardBreak"},{"type":"text","text":"¿Qué lenguas has escuchado o leído en tu entorno (familia, trabajo, ocio, televisión, lectura) que no hayas mencionado en la pregunta anterior?\"","marks":[{"type":"em"},{"type":"strong"}]}]},{"type":"paragraph","content":[{"type":"text","text":"Si un participante selecciona un idioma que ya había seleccionado anteriormente, esto causará una duplicación en la lógica de ramificación abajo. En ese caso, el clínico deberá revisar el cuestionario después, borrar o restablecer las respuestas duplicadas y luego desmarcar el idioma seleccionado por error."}]},{"type":"mediaSingle","attrs":{"layout":"center"},"content":[{"type":"media","attrs":{"type":"external","height":800,"width":1526,"url":"https://cloud.wikis.utexas.edu/wiki/download/attachments/107708681/kamshavdz9.png"}}]}]},{"type":"orderedList","attrs":{"order":4},"content":[{"type":"listItem","content":[{"type":"paragraph","content":[{"type":"text","text":"Caso Especial para Participantes de Barcelona:","marks":[{"type":"strong"}]}]},{"type":"bulletList","content":[{"type":"listItem","content":[{"type":"paragraph","content":[{"type":"text","text":"Algunos participantes de Barcelona pueden haber recibido el cuestionario antes del inicio del estudio R01. Si participaron antes del inicio del R01, deberá:"}]},{"type":"bulletList","content":[{"type":"listItem","content":[{"type":"paragraph","content":[{"type":"text","text":"Acceder a "},{"type":"text","text":"Qualtrics","marks":[{"type":"strong"}]},{"type":"text","text":", extraer los datos y luego ingresarlos manualmente en el \"Primera Visita Cuestionario de Bilingüismo\" en Redcap."}]}]}]}]}]}]},{"type":"listItem","content":[{"type":"paragraph","content":[{"type":"text","text":"Almacenamiento de Datos:","marks":[{"type":"strong"}]}]},{"type":"bulletList","content":[{"type":"listItem","content":[{"type":"paragraph","content":[{"type":"text","text":"Los datos del Cuestionario de Bilingüismo Pre-R01 se encuentran actualmente en dos ubicaciones:"}]},{"type":"bulletList","content":[{"type":"listItem","content":[{"type":"paragraph","content":[{"type":"text","text":"Enlace a Box: Datos del Cuestionario de Bilingüismo (Pacientes Pre-R01)","marks":[{"type":"link","attrs":{"href":"https://utexas.box.com/s/jw5ijben2jt7cagkn1kv0xmfhtmikusw"}}]},{"type":"text","text":" (Incluye todos los pacientes Pre-R01, tx y datos de speechFTLD-B); Redcap Project "},{"type":"text","text":"Bilingual_questionnaire_4 (Redcap SEN)

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And here: Evaluación de lenguaje Pre-R01 (speechFTLD B) redcap project

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We have discussed the possibility of moving it to Data Raw

1. En Record Status Dashboard o Add/Edit Records, selecciona el botón para abrir el

Cuestionario De Bilingüismo Primera Visita

2. Selecciona el idioma dominante del participante

 

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4. Selecciona si el participante es paciente o voluntario.

image-20240625-132053.pngImage Removed

5. Selecciona “Save and Stay”

6. Envia el cuestionario al paciente

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","marks":[{"type":"link","attrs":{"href":"https://redcap.sen.es/redcap_v13.1.27/DataEntry/record_status_dashboard.php?pid=250"}}]}]}]},{"type":"listItem","content":[{"type":"paragraph","content":[{"type":"text","text":"En Redcap, bajo el proyecto "},{"type":"text","text":"Evaluación de Lenguaje Pre-R01","marks":[{"type":"link","attrs":{"href":"https://redcap.iibsantpau.cat/redcap_v14.0.2/DataEntry/record_status_dashboard.php?pid=623"}},{"type":"strong"}]},{"type":"text","text":" ","marks":[{"type":"link","attrs":{"href":"https://redcap.iibsantpau.cat/redcap_v14.0.2/DataEntry/record_status_dashboard.php?pid=623"}}]},{"type":"text","text":"(para pacientes de speechFTLD-B)."}]}]}]}]}]}]},{"type":"listItem","content":[{"type":"paragraph","content":[{"type":"text","text":"Actualizaciones Futuras:","marks":[{"type":"strong"}]}]},{"type":"bulletList","content":[{"type":"listItem","content":[{"type":"paragraph","content":[{"type":"text","text":"Se ha discutido la posibilidad de mover estos datos al proyecto "},{"type":"text","text":"Data Raw","marks":[{"type":"strong"}]},{"type":"text","text":" para una futura organización."}]}]}]}]}]},{"type":"paragraph","content":[]}]

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content[{"type":"paragraph","content":[{"type":"text","text":"Select the participant's dominant language.","marks":[{"type":"strong"}]}]},{"type":"rule"},{"type":"paragraph","content":[{"type":"text","text":"Selecciona el idioma dominante del participante ","marks":[{"type":"strong"}]}]},{"type":"paragraph","content":[{"type":"text","text":" "}]},{"type":"mediaSingle","attrs":{"layout":"center"},"content":[{"type":"media","attrs":{"type":"external","height":278,"width":794,"url":"https://cloud.wikis.utexas.edu/wiki/download/attachments/107708681/image-20240625-132034.png?version=1&modificationDate=1719393450996&cacheVersion=1&api=v2&borderSize=&borderColor=&targetURL="}}]},{"type":"paragraph","content":[]}]
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content[{"type":"paragraph","content":[{"type":"text","text":"Send the questionnaire to the patient.","marks":[{"type":"strong"}]}]},{"type":"paragraph","content":[{"type":"text","text":"A ","marks":[{"type":"strong"}]},{"type":"text","text":"video explaining","marks":[{"type":"link","attrs":{"href":"https://utexas.box.com/s/aqxlk7va86hw6gj8tp4qiqv0qim0cv02"}},{"type":"strong"}]},{"type":"text","text":" how to do it.","marks":[{"type":"strong"}]}]},{"type":"rule"},{"type":"paragraph","content":[{"type":"text","text":"Envía el cuestionario al paciente ","marks":[{"type":"strong"}]}]},{"type":"paragraph","content":[{"type":"text","text":"Un video explicando como hacerlo.","marks":[{"type":"link","attrs":{"href":"https://utexas.box.com/s/aqxlk7va86hw6gj8tp4qiqv0qim0cv02"}},{"type":"strong"}]},{"type":"text","text":" ","marks":[{"type":"strong"}]}]}]

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Lab Decisions/ Decisiones del lab

No lab decisions have been made regarding the use of this questionnaire. It should be administered as stated in the steps.


No se han tomado decisiones en el laboratorio con respecto al uso de este cuestionario. Debe administrarse tal como se indica en los pasos.